Newly Diagnosed Dashboard
Calm, clear support for the first steps after a dementia diagnosis — you are not alone.
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Here’s what’s ready for you on the Newly Diagnosed dashboard today.
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Welcome. You are not alone.
Receiving a diagnosis of dementia, or supporting someone who has, can feel overwhelming. This space has been created to offer clear, practical information and support at your own pace.
Everything here is designed to help you understand what the diagnosis means, find reliable Australian resources, and take steady next steps when you feel ready. There is no pressure to do everything at once.
Where to start
These five steps provide a calm and practical starting point. You can return to them at any time.
- 1Understand the diagnosis
Read a clear, plain-language overview of what the diagnosis means and what to expect in the early stages.
- 2Reach out for specialised support
Contact Dementia Australia or the National Dementia Helpline (1800 100 500). They provide free, confidential information and support for people who are newly diagnosed and their families.
- 3Prepare for your next medical appointment
Use the simple checklist of questions to ask your doctor so you leave each appointment with clearer information.
- 4Look after your emotional wellbeing
Adjustment takes time. Access gentle resources designed to support emotional wellbeing for both the person diagnosed and those who care about them.
- 5Begin building your support network
Identify who can help — family, friends, or local services — and learn how to involve them in a way that feels manageable.
Personalise your dashboard
Choose your role so we can prioritise your most useful tools. Your dashboard puts the tools you are most likely to need first. Everything free is open to you, and tools in paid plans show what each plan includes.
Take Part in Research — Trials Near You
Australian Dementia Research & Impact Hub — trials, researchers, funding & ways to take part.
Community-Suggested Research, Books & Events
Community-suggested trials, research, books, events & news — reviewed before publishing. Spotted something good? Suggest it here too.
Find Local Services & Support Near You
Sponsored Providers directory — services that have paid to be listed. A listing is not an endorsement by Cassandra's Compass. Sponsored providers with consistently positive community reviews are gathered separately.
Understanding the diagnosis
A diagnosis of dementia means that changes are occurring in the brain that affect memory, thinking, or behaviour. It is not a single disease, and the experience is different for every person.
In the early stages many people continue to live well, maintain routines, and take part in the activities that matter to them. Clear information helps reduce uncertainty and supports better planning.
Emotional wellbeing and adjustment
It is normal to experience a range of emotions after a diagnosis — shock, sadness, worry, or uncertainty. These feelings are valid.
Support is available for both the person who has received the diagnosis and the people who care about them. Small, steady steps and the right information can make the adjustment process more manageable.
Key Australian supports
You do not have to navigate this alone. The following organisations provide free, reliable, Australia-specific information and support:
- Dementia Australia – Information, education, and support services.
- National Dementia Helpline – 1800 100 500 (24 hours, 7 days).
- My Aged Care – Entry point for government-funded aged-care services.
- Carer Gateway – Practical support and counselling for family carers.
Preparing for medical appointments
Medical appointments are more useful when you arrive prepared. A short list of questions can help you gather the information you need and reduce the chance of leaving with unanswered concerns.
Daily life and practical strategies
Many people find that simple adjustments to routines, communication, and the home environment make daily life easier and more predictable. These strategies are practical and can be introduced gradually.
Building your support network
Support from family, friends, and community services can make a significant difference. It is often helpful to share clear information about the diagnosis and to ask for specific kinds of help rather than general offers of assistance.
Start a free care log (last 14 days)
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You can return at any time
You can return to this dashboard at any time. Move through the information at a pace that feels right for you. Support is available whenever you need it.
Knowledge doesn't just inform care — it transforms it. Every thing you learn about dementia, every framework you understand, every skill you build, translates directly into better moments for the person in front of you. That is why education in aged care is not optional. It is the most powerful act of care we have.
— Cassandra's Compass